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Web Resources of Tracheostomy Patients

Clinical Trials - from the National Insitutes of Health

Support Groups

  • Yahoo Online Support Goup, the "Neckbreathers"
    Online support group – For people with trachs: tracheostomy, tracheotomy, stoma and/or laryngectomy

  • Tracheostomy.info
    An online community that offers discussion forums

  • Aaron’s tracheostomy page and Web ring
    A web ring lets user quickly, easily, and reliably navigate thousands of related websites organized by areas of interest.
     
  • TrachCare
    TrachCare is a registered 501(c)(3) non-profit organization created to provide support and information to parents, caregivers and healthcare providers of children who have, or previously had, a tracheostomy and children who are on ventilator support.

    http://www.trachcare.org/about.html

  • WebWhispers
    Large support group for individual laryngectomee survivors of larynx and other throat cancers. 
    Members will support you in your rehabilitation and you may find many of the answers to your questions here on our WebWhispers site.

  • Trach Kids
    This community website is all about real-life kids with tracheostomies.
  • ACT (Aid for Children with Tracheotomies)
    Aid For Children with Tracheostomies – ACT, is a Parent Support Group and registered charity run by people who have all dealt with tracheostomy care at some stage in life.  We aim to offer support and advice to those who come into contact with a child who has a tracheostomy.

News and Information Websites

The Global Tracheostomy Collaborative partners with hospitals and providers around the world working together to improve the care, safety and quality of life of every individual with a tracheostomy or laryngectomy.

The National Tracheostomy Safety Project was created by a UK group of physicians dedicated to improving the management of patients with tracheostomies. They have sought the help of other colleagues in Critical Care, Anaesthesia, ENT surgery and Maxillofacial surgery, forming a multi-disciplinary, multi-site working party to develop these resources.

MedlinePlus is the National Institutes of Health's Web site for patients and their families and friends. Produced by the National Library of Medicine, the world’s largest medical library, it brings you information about diseases, conditions, and wellness issues in language you can understand. MedlinePlus offers reliable, up-to-date health information, anytime, anywhere, for free.

Safety Products and Medical Jewelry

AMERICAN MEDICAL IDENTIFICATIONS, INC  American Medical ID features custom engraved medical identification bracelets, necklaces and medallions. Important information on medical conditions, drug or food allergies, medicines taken or emergency contacts can be engraved onto the surface of a medical identification jewelry piece. Wearing a medical ID is recommended by physicians and healthcare organizations throughout the world.

CARE MEDICAL HISTORY BRACELET  The World’s First Computer Ready Medical History Bracelet. Flash drive bracelet with preloaded e-Manager Software so you can fill in your medical history easily. The CARE Medical History Bracelet enables hospitals, physicians, nurses and other authorized users, to share a patient’s medical history, providing efficiency and reducing the risk of human error in every patient care event.

MEDICALERT  Personalized Medic Alert Identification, 24-hour hotline for Emergency Personnel.

 

SAFEGUARD MARKETING, INC  The Safeguard Personal Alert system is for people at-home who need to communicate with family members that assistance is needed. Unlike the expensive systems that send signals to police and medics for dire emergencies, this is for at home communications.

 

SEATBELT SLIDER.COM  The Seatbelt Slider is a device that fits on your seat belt so you can adjust the shoulderstrap away from your neck.